RoundsHospice and palliative care

Bereavement support after hospice: what families can expect

What hospice grief support is, what Medicare requires, what HealthView’s bereavement team does in the thirteen months after a death, and how to ask for it.

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When someone dies on hospice, the family often expects the hospice to disappear with the equipment. It doesn’t. Grief support for the family is part of hospice care, written into Medicare’s rules. This note explains what bereavement support is, what it usually includes, and how to use it, including if you never signed up for anything and are only now realizing you could use some help.

Grief support is part of hospice

Medicare treats the family, not just the patient, as part of the hospice’s care. Every Medicare-certified hospice must offer bereavement counseling to the family for up to a year after the death, and must plan for it while the patient is still alive.1 Families don’t pay for it. It’s part of the hospice benefit.

At HealthView our bereavement team stays in touch for thirteen months, so the first anniversary isn’t faced alone.

It starts before the death

The rules ask hospices to look at the family’s needs from the beginning of care.1 In practice, the social worker and chaplain get to know the family during the illness: who’s carrying the most, who lives far away, who has been through a hard loss before. That early knowledge shapes what support looks like afterward.

What support can include

Every family is different, and support is meant to fit the family. It often includes phone calls and letters through the year, especially around the dates that tend to be hard; a visit from the social worker or chaplain; information about what grief is like and what helps; grief groups; and help finding a counselor in the community for anyone who needs more.2

Support is offered, never required. Some families want regular calls. Some want to be left alone for a while and call later. Both are fine.

Who it’s for

Bereavement support is for the family, and families come in many shapes. A spouse, adult children, grandchildren, a partner, a close friend who did the caregiving, a neighbor who came every day. If the loss is yours, you can ask.

Children

Children grieve too, and they grieve differently from adults: in short bursts, often coming back to the loss at later milestones.2 Ask the bereavement team about support for children and teenagers in the family. Our note on helping children grieve has practical guidance.

When grief doesn’t ease

For most people grief softens with time. For some it doesn’t, and that is worth telling someone about.2 If your grief feels as heavy a year later as it did at first, or you can’t return to the things you need to do, tell the bereavement team. They can help you find a counselor who works with grief. If you have thoughts of ending your life, call or text 988 at any hour.3

How to ask

Call the hospice that cared for your loved one and ask for the bereavement team. If it was HealthView, call our hospice line at any hour. You don’t need to know what you need. Saying “I’m having a hard time” is enough.

Questions families ask

Do we pay for bereavement support?

No. Medicare-certified hospices must offer bereavement counseling to the family for up to a year after a death. It’s part of the benefit.1

How long does HealthView stay in touch?

Thirteen months, through the first anniversary of the death.

I said no to support at first. Can I still ask?

Yes. Call any time in the year after the death.

Is support only for the spouse?

No. It’s for the family and the people who were close, including children, partners and friends who gave care.

Sources

Sources 3 references
  1. 42 CFR 418.64, “Condition of participation: Core services,” including bereavement counseling. Legal Information Institute, Cornell Law School. law.cornell.edu (opens in a new tab)
  2. National Cancer Institute, PDQ Supportive and Palliative Care Editorial Board, “Grief, Bereavement, and Coping With Loss (PDQ®), Health Professional Version,” updated June 26, 2024. ncbi.nlm.nih.gov (opens in a new tab)
  3. 988 Suicide & Crisis Lifeline, call or text 988, any hour. 988lifeline.org (opens in a new tab)

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