RoundsHospice and palliative care
Legacy projects and saying goodbye: ideas for families
Simple ways families capture a loved one’s voice, stories and wishes during a serious illness, why a meaningful goodbye matters, and how the hospice team can help.
Listen to this note
Families often wish later that they had recorded a voice, written down a recipe or asked one more question. A legacy project is any way of capturing who someone is while they can still take part. It doesn’t need to be big. This note offers ideas, and explains why the time spent on a goodbye matters for the family afterward.
Why it matters
Research on grief suggests that what families carry afterward depends less on whether they were in the room at the moment of death and more on whether they had a meaningful goodbye and good time together near the end.1 Legacy projects are one way to make that time count.
Ideas that take an afternoon
Record their voice. A phone is enough. Ask them to tell a favorite story, sing a song, say a prayer, or read a book to a grandchild.
Write down the recipes only they know, in their words. Take photos of their hands, or of their hand holding yours.
Ask questions: How did you meet? What were you proudest of? What do you want the grandchildren to know? What should we never forget about you?
Ideas that take a little longer
Letters for future milestones: a graduation, a wedding, a first child. A memory book that family members fill in. A family tree with their stories. A playlist of the songs that mattered.
Let them lead
Some people want to do this, and some don’t. Follow their energy and their wishes. A person who is tired may only manage ten minutes. That’s enough.
The things worth saying
Thank you. I’m sorry. I forgive you. I love you. Goodbye. Families who say these things, in any words, often say it mattered more than anything else.
Help from the hospice team
Social workers, chaplains and volunteers on a hospice team often help families with legacy projects: recording stories, making hand impressions, writing letters. Ask what’s possible. After a death, the bereavement team stays in touch with the family, for up to a year under Medicare’s rules, and for thirteen months at HealthView.2
Questions families ask
Is it morbid to record her voice?
No. Many families treasure recordings later, and many people like being asked about their stories.
What if he’s too tired?
Follow his energy. Ten minutes is enough, and some days he may not want to.
Can the hospice team help?
Yes. Social workers, chaplains and volunteers often help with legacy projects. Ask what’s possible.
Sources
Sources 2 references
- National Cancer Institute, PDQ Supportive and Palliative Care Editorial Board, “Grief, Bereavement, and Coping With Loss (PDQ®), Health Professional Version,” updated June 26, 2024. ncbi.nlm.nih.gov (opens in a new tab)
- 42 CFR 418.64, “Condition of participation: Core services,” including bereavement counseling. Legal Information Institute, Cornell Law School. law.cornell.edu (opens in a new tab)
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